Ira Kuzma”Jersey Boys”cast members(consisting of Jeff Leibow, center) at the NF Hope performance in 2014.
Friday, Oct. 20, 2017|2 a.m.
. When previous “Jersey Boys” star Jeff Leibow arranged the first NF Hope benefit concert in Las Vegas in 2011, he was hoping the event would develop into something more than a yearly awareness and fundraising event for the Neurofibromatosis Network, a company devoted to households and people struggling with the obscure however prevalent congenital disease.
“I hoped, but it wasn’t up until after the 2nd year that I believed it could be a reality,” Leibow states. “I just [believed] wouldn’t it be cool if we could do this in cities across the country every year, maybe a couple lots, and I never really let that go. I hoped quietly to myself I would see the seventh and 8th and ninth and 10th concerts, and now we’re seeing it end up being reality.”
Leibow left “Jersey Boys” in 2014 to end up being the director of advancement for the Chicago-based network and the organizer of the benefits, which are just now breaking out of the Las Vegas market. The first NF Hope performance in New York was kept in Might and the inaugural Chicago event is set for April.
Meanwhile, the seventh yearly Las Vegas show is set for 1 p.m. Oct. 22 at the Palazzo Theatre, with entertainers consisting of Clint Holmes and Kelly Clinton, Mark Shunock and Cheryl Daro, the stars of “World’s Greatest Rock Program” at the Stratosphere and “Tenors of Rock” at Harrah’s and more. Regional radio personality Chet Buchanan will host and ticket information can be found at nfhopeorg.
Leibow and his partner, Melody, will perform also, continuing with a custom of singing a song selected by their 8-year-old daughter Emma, who was identified with Neurofibromatosis when she was 9 months old. “Normally the song comes from a film she’s delighted about, so this year we’re doing ‘True Colors,’ the Justin Timberlake and Anna Kendrick version from ‘Giants,'” Leibow states. “She actually has a knack for choosing the ideal song for the concert, and this will be an excellent one to sing.”
Neurofibromatosis (NF) is a genetic disorder of the nerve system characterized by tumors that can grow on any nerve in the body without caution. It impacts around 128,000 individuals, more common than cystic fibrosis, genetic muscular dystrophy, Huntington’s disease and Tay Sachs integrated.
Leibow says Emma has about 30 growths that they’re aware of and went through a comprehensive surgical treatment over the summertime, but she’s doing extremely well. “If you saw Emma on the street you probably wouldn’t think a lot of it, but that’s not constantly the case with NF,” he states. “Even if somebody looks best on the exterior doesn’t imply there isn’t really something going on, which’s always been the most significant challenge in getting support. NF reveals itself in various ways. However even if it isn’t really among the much better supported illness out there doesn’t indicate it doesn’t require aid.”
The Las Vegas occasion is assisting in a different method this year, with a part of its earnings going to the Path 91 shooting victims’ fund. For Leibow, it was a natural choice.
“This concert is born in Las Vegas and I’m happy that NF Hope will constantly have actually been established in this city. Individuals and performers in this city have actually been so kind and generous and encouraging over the years, and I have actually only been here 9 years however I feel like I was born here,” he states. “This is a really good chance to commemorate that and return to the people who need it today. And knowing we stopped to pay homage to this city and back up its individuals is important and required.”